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Improving Cancer Survivorship Care for Latino Adolescent, Young Adult Survivors through Community-Partnered Participatory Research.

Jacqueline N CasillasPatricia A GanzKatherine KahnMargaret StuberRoshan BastaniLindsay F SchwartzSonia MoralesJoshua MacadangdangEmma K LidingtonKarla QuintanaAmri GonzalezEsther CasasElvia Barboa
Published in: Journal of participatory research methods (2021)
CPPR between an NCI-designated cancer center and a community-based organization is a new research model for conducting minority AYA cancer survivor outreach. Open communication was critical in engaging the Latino community to discuss their survivorship needs. Community stakeholders were key to infrastructure success through fostering a cohesive partnership with and acting as the voice of the Latino community. Implementing a cross-training program promoted continued engagement of community members with academic partners. Proper infrastructure development is critical to building successful research partnerships in order to develop culturally-tailored interventions to improve survivorship care knowledge.
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