Comparing online crowdsourcing with clinic patient enrollment: Findings from the IP4IC Study on interstitial cystitis/bladder pain syndrome.

Joseph J JanickiElijah P WardSarah N BartoloneLaura E LambNitya AbrahamMelissa LaudanoChristopher P SmithKenneth M PetersBernadette M M ZwaansMichael B Chancellor

Published in: Digital health (2023)

The IP4IC Study provides valuable insights into the similarities and differences between patients recruited through clinics and those recruited through online crowdsourcing. There were no significant differences in disease symptoms among these groups. Individuals who express an interest in digital health research and self-identify as having been previously diagnosed by physicians with IC/BPS can be regarded as reliable candidates for crowdsourcing research.

Keyphrases

primary care
end stage renal disease
ejection fraction
social media
chronic kidney disease
health information
spinal cord injury
prognostic factors
patient reported outcomes