Comparing objective and self-reported measures of adherence in haemophilia.

Vanessa Giroto GuedesJosé Eduardo CorrenteAlbert FarrugiaSylvia ThomasPatrick Alexander WachholzEdison Iglesias de Oliveira Vidal

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2019)

Our results showed significant discrepancies between subjective and objective measures of adherence, which likely reflect the influence of social desirability bias in self-reported measures and different concepts of adherence between patients/caregivers and haemophilia experts. Additionally, our results allow us to hypothesize that studies on adherence to prophylaxis in haemophilia relying exclusively on information from self-reports and questionnaires may substantially overestimate adherence levels.

Keyphrases

end stage renal disease
glycemic control
chronic kidney disease
ejection fraction
mental health
newly diagnosed
type diabetes
prognostic factors
physical activity
patient reported outcomes
insulin resistance
depressive symptoms
social media