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A scoping review presenting a wide variety of research on paediatric and adolescent patients with Marfan syndrome.

Ingeborg Beate LidalTrine BathenHeidi JohansenGry Velvin
Published in: Acta paediatrica (Oslo, Norway : 1992) (2020)
A wide range of research topics on adolescent and paediatric Marfan syndrome was found, but qualitative studies and a focus on psychosocial matters were lacking. Future investigations addressing noncardiovascular consequences and patient experiences are needed, as well as studies reaffirming or replicating existing intervention study results.
Keyphrases
  • case report
  • mental health
  • young adults
  • intensive care unit
  • emergency department
  • case control
  • systematic review
  • current status
  • aortic dissection