A scoping review presenting a wide variety of research on paediatric and adolescent patients with Marfan syndrome.
Ingeborg Beate LidalTrine BathenHeidi JohansenGry VelvinPublished in: Acta paediatrica (Oslo, Norway : 1992) (2020)
A wide range of research topics on adolescent and paediatric Marfan syndrome was found, but qualitative studies and a focus on psychosocial matters were lacking. Future investigations addressing noncardiovascular consequences and patient experiences are needed, as well as studies reaffirming or replicating existing intervention study results.