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Reinforcing Health Data Sharing through Data Democratization.

Yuhang WangBernd BlobelBian Yang
Published in: Journal of personalized medicine (2022)
In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims at enabling seamless mobility of health data across trust boundaries through addressing structural and functional challenges of its underlying infrastructure with the core concept of data democratization. A programmatic design of an HD platform was elaborated, followed by an introduction of one of our critical designs-a "reverse onus" mechanism that aims to incentivize creditable data accessing behaviors. This scheme shows a promising prospect of enabling a democratic health data-sharing platform.
Keyphrases
  • health information
  • healthcare
  • electronic health record
  • public health
  • big data
  • mental health
  • social media
  • machine learning
  • health promotion
  • high throughput
  • data analysis
  • deep learning
  • single cell