A Survey of Research Participants' Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers.

Rachele M Hendricks-SturrupFang ZhangChristine Y Lu

Published in: Journal of personalized medicine (2022)

This study offers the first insights into how privacy-related experiences, adjusted for age range and education level, may shape ResearchMatch participants' willingness to share several sources of real-world data sources with precision medicine researchers. Future work should further explore these insights.

Keyphrases

big data
electronic health record
mental health
drinking water
health information
healthcare
artificial intelligence
machine learning
quality improvement
current status
data analysis