The current status of medical care for myotonic dystrophy type 1 in the national registry of Japan.

Kosuke YamauchiTsuyoshi MatsumuraHiroto TakadaSatoshi KuruMichio KobayashiTomoya KubotaEn KimuraHarumasa NakamuraMasanori P Takahashi

Published in: Muscle & nerve (2023)

This study shows difference in treatment patterns for DM1 in Japan compared to other countries, such as lower rates of use of implantable cardiac devices and higher rates of ventilator use. This data may be useful in discussions aimed at standardizing medical care for patients with DM.

Keyphrases

current status
left ventricular
electronic health record
heart failure
quality improvement
acute respiratory distress syndrome
glycemic control
big data
metabolic syndrome
machine learning
artificial intelligence
replacement therapy