Using hospital registries in Australia to extend data availability on vulval cancer treatment and survival.
David M RoderMargaret DavySid Selva-NayagamSellvakumaram ParamasivamJacqui AdamsDorothy KeefeIan OlverCaroline MillerElizabeth BuckleyKate PowellKellie FuscoDianne Buranyi-TrevartonMartin K OehlerPublished in: BMC cancer (2018)
The data illustrate the complementary value of hospital-registry data to population-registry data for informing local providers and health administrations of trends in management and outcomes, in this instance for a comparatively rare cancer that is under-represented in trials and under-reported in national statistics. Hospital registries can fill an evidence gap when clinical data are lacking in population-based registries.