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Impact of a digital manual for guidance on malignant hyperthermia: patient education.

Gislene RodriguesPamela Vieira de AndradeJoilson Moura Dos SantosJosé Luiz Gomes do AmaralHelga Cristina Almeida da Silva
Published in: Orphanet journal of rare diseases (2022)
The digital manual improved patients' MH knowledge. Online contacts with the MH service increased, allowing greater information dissemination. As informational materials could increase knowledge/adherence to prevention/therapy, digital information about MH validated for patients should be implemented.
Keyphrases
  • healthcare
  • end stage renal disease
  • ejection fraction
  • health information
  • prognostic factors
  • case report
  • metabolic syndrome
  • bone marrow
  • mesenchymal stem cells
  • insulin resistance
  • patient reported