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Factors associated with care- and health-related quality of life of caregivers of children with juvenile idiopathic arthritis.

Luiza R GrazziotinGillian CurrieMarinka TwiltMaarten J IJzermanMichelle M A KipHendrik KoffijbergGouke BonselSusanne M BenselerJoost F SwartSebastiaan J VastertNico M WulffraatRae S M YeungWineke ArmbrustJ Merlijn van den BergDeborah A Marshall
Published in: Pediatric rheumatology online journal (2022)
Our findings indicated that to understand the impact of JIA on families, we need to consider socio-economic factors, such as employment and support to carry caregiving tasks, in addition to child HRQoL.
Keyphrases
  • juvenile idiopathic arthritis
  • palliative care
  • healthcare
  • disease activity
  • young adults
  • mental health
  • working memory
  • quality improvement
  • mental illness
  • systemic lupus erythematosus
  • chronic pain