Patient research priority setting partnership in human T-cell lymphotropic virus type I.
Adine AdonisAnne -Marie RussellGraham P TaylorMelanie PrestonAlpheus ShieldsSue StrachanSky YoungHaissata DialloStephen A AshfordElizabeth CassidyPublished in: Health expectations : an international journal of public participation in health care and health policy (2023)
People living with HTLV-1 were involved in the iterative design, conduct, analysis, writing and dissemination of this project through the patient involvement workshops. As a result of this engagement, a patient led advisory group has been set up to assist with the dissemination of the findings.