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The Politics, Promises, and Perils of Data: Evidence-Driven Policy and Practice for Menstrual Health.

Inga T WinklerChris BobelLauren C HoughtonNoémie ElhadadCaitlin GruerVanessa Paranjothy
Published in: Women's reproductive health (Philadelphia, Pa.) (2020)
Data determine what we know about the menstrual cycle; they inform policy and program decisions; they can point us to neglected issues and populations. But collecting and analyzing data are complicated and often fraught processes, because data are political and subjective, decisions on what data we collect and what data we do not collect are not determined by accident. As a result, despite the significant potential of the current rise in attention to menstruation, we also see risks: a lack of a solid evidence base for program decisions and resulting sensationalization; concerns about data privacy; an overreliance on participants' recall, on the one hand, while not involving participants adequately in decision making, on the other hand; and a lack of contextualized and disaggregated data. Yet better communication, contextualization, and collaboration can address many of these risks.
Keyphrases
  • electronic health record
  • big data
  • healthcare
  • public health
  • decision making
  • mental health
  • quality improvement
  • risk assessment
  • health information
  • social media
  • physical activity
  • deep learning