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Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study.

Emily Maria GodfreyTraci M KazmerskiGeorgia BrownErin K ThayerLaura MentchMolly PamMorhaf Al Achkar
Published in: JMIR formative research (2021)
Our findings suggest CF community members are interested in PCOR. A high-quality training program would fill a current deficit in methodological research. This assessment identified the topics and formats desired and can be used to develop targeted training to enhance meaningful PCOR in CF.
Keyphrases
  • cystic fibrosis
  • pseudomonas aeruginosa
  • mental health
  • healthcare
  • lung function
  • cancer therapy
  • study protocol
  • type diabetes
  • clinical trial
  • metabolic syndrome
  • drug delivery