Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study.
Emily Maria GodfreyTraci M KazmerskiGeorgia BrownErin K ThayerLaura MentchMolly PamMorhaf Al AchkarPublished in: JMIR formative research (2021)
Our findings suggest CF community members are interested in PCOR. A high-quality training program would fill a current deficit in methodological research. This assessment identified the topics and formats desired and can be used to develop targeted training to enhance meaningful PCOR in CF.