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How are adults with capacity-affecting conditions and associated communication difficulties included in ethically sound research? A documentary-based survey of ethical review and recruitment processes under the research provisions of the Mental Capacity Act (2005) for England and Wales.

Karen BunningOluseyi Florence JimohRob HeywoodAnne KillettHayley RyanCiara ShigginsPeter E Langdon
Published in: BMJ open (2022)
People with capacity-affecting conditions and associated communication difficulties continue to be excluded from research, with recruitment efforts largely concentrated around participant-facing documentation. There is a need for a more nuanced approach if such individuals are to be included in ethically sound research.
Keyphrases
  • mental health
  • electronic health record
  • quality improvement