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Personalized medical information card for adults with 22q11.2 deletion syndrome: An initiative to improve communication between patients and healthcare providers.

Joanne C Y LooErik BootMaria CorralAnne Susan Bassett
Published in: Journal of applied research in intellectual disabilities : JARID (2020)
Providing a PMIC to individuals with intellectual disabilities and their caregivers could help improve patient safety and assist in advocacy.
Keyphrases
  • patient safety
  • healthcare
  • quality improvement
  • end stage renal disease
  • ejection fraction
  • chronic kidney disease
  • palliative care
  • prognostic factors
  • patient reported outcomes