Experiences of security and continuity of care: Patients' and families' narratives about the work of specialized palliative home care teams.
Anna KlarareBirgit H RasmussenBjöörn FossumCarl Johan FürstJohan HanssonCarina Lundh HagelinPublished in: Palliative & supportive care (2016)
Patients' and family members' descriptions of the work of SPHC teams are conceptualized through experiences of security and continuity of care. Experiences of security are fostered through the 24/7 availability of the team, sensitivity and flexibility in meeting patients' and families' needs, and practical adjustments to enable care at home. Experiences of continuity of care are fostered through the team's collective approach, where the individual team member knows the patients and family members, including their whole situation, and cares about the little things in life as well as caring for the family unit.