Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research.

Sandi DheensaAngela FenwickShiri Shkedi-RafidGillian CrawfordAnneke M Lucassen

Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2015)

We argue that HCPs can sometimes share genetic information without breaching confidentiality and that they could factor into their considerations the potential harm to family dynamics of nondisclosure. However, we need more nuanced research about their responsibilities to relatives, particularly as genomic tests are used more frequently in clinical practice.Genet Med 18 4, 290-301.

Keyphrases

healthcare
end stage renal disease
clinical practice
copy number
genome wide
ejection fraction
chronic kidney disease
peritoneal dialysis
prognostic factors
health information
dna methylation
gene expression
patient reported outcomes