Living beyond loss: a qualitative investigation of caregivers' experiences after the death of their relatives with amyotrophic lateral sclerosis.
Eleonora VolpatoPaolo Innocente BanfiValentina PolettiFrancesco PagniniPublished in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2023)
Results emphasize the need to improve the psychological support offered to caregivers of person living with ALS after the patient's death, tailoring it to the specificity of the condition, to meet their emotional needs, reduce isolation and help them cope with practical challenges and plans.