Family-centred care interventions for children with chronic conditions: A scoping review.
Andrea J ChowAmmar SaadZobaida Al-BaldawiRyan IversonBecky SkidmoreIsabel JordanNicole PalloneMaureen SmithPranesh ChakrabortyJamie BrehautEyal CohenSarah DyackJane GillisSharan GoobieCheryl R GreenbergRobin HayeemsBrian HuttonMichal Inbar-FeigenbergShailly Jain-GhaiSara KhanguraJennifer J MacKenzieJohn J MitchellZeinab MoazinStuart G NichollsAmy PenderChitra PrasadAndreas SchulzeKomudi SiriwardenaRebecca N SparkesKathy N SpeechleySylvia StocklerMonica TaljaardMari TeitelbaumYannis TrakadisClara Van KarnebeekJagdeep S WaliaKumanan WilsonBeth K PotterPublished in: Health expectations : an international journal of public participation in health care and health policy (2024)
This study was co-developed with three patient partner co-investigators, all of whom are individuals with lived experiences of rare chronic diseases as parents and/or patients and have prior experience in patient engagement in research (I. J., N. P., M. S.). These patient partner co-investigators contributed to this study at all stages, from conceptualization to dissemination.