Patient-Reported Outcome Measures to Inform Care of People With Dementia-A Systematic Scoping Review.
Darshini R AytonMadeleine L GardamElizabeth K PritchardRasa RuseckaiteJoanne RyanSandra J RobinsonHenry BrodatyStephanie A WardSusannah AhernPublished in: The Gerontologist (2021)
PROMs provide an opportunity for a patient with dementia to share experiences and perspectives of care. A number of dementia-specific PROMs exist, yet none are used in dementia registries and the majority of studies utilize PROMs via a proxy. The use of PROM for patients with dementia, particularly in the context of dementia registries, requires further exploration and consideration.