Advance Directive Documentation in a Huntington's Disease Clinic: A Retrospective Chart Review.

Published in: Tremor and other hyperkinetic movements (New York, N.Y.) (2022)

Most patients with Huntington's disease do not have documentation of completed advance directives (ADs) within their medical chart. In a retrospective chart review 24.2% of patients seen in a specialty HD clinic had documentation of ADs in a provider's note and 9.9% had ADs available within the EMR.

Keyphrases

electronic health record
primary care
end stage renal disease
advance care planning
ejection fraction
newly diagnosed
healthcare
chronic kidney disease