Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study.

Louis SoussandMathieu KuchenbuchClaude MessiaenArnaud SandrinAnne-Sophie JannotRima Nabbout

Published in: Orphanet journal of rare diseases (2022)

Although telehealth was quickly introduced during the COVID-19 pandemic, RUD patient care was strongly affected in France with a decline in the number of patients treated and new patients recruited. This is likely to result in delays in patient diagnosis and care over the next few years.

Keyphrases

end stage renal disease
healthcare
newly diagnosed
chronic kidney disease
palliative care
prognostic factors
quality improvement
patient reported outcomes
pain management
health insurance
affordable care act