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Ethical frameworks for obtaining informed consent in tumour profiling: an evidence-based case for Singapore.

Yasmin BylstraTamra LysaghtJyothi ThrivikramanSangeetha WatsonPatrick Tan
Published in: Human genomics (2017)
Findings provide support for the return of tumour profiling results provided that they are accompanied with an adequate explanation from qualified personnel. They also support the use of broad consent regiments within an ethical framework that promotes trust and benefit sharing with stakeholders and provides accountability and transparency in the storage and sharing of biomolecular data for research.
Keyphrases
  • health information
  • social media
  • single cell
  • decision making
  • electronic health record
  • big data
  • healthcare
  • artificial intelligence
  • data analysis