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Preferences for disclosing adverse childhood experiences for children and adults with cystic fibrosis.

Wadsworth A WilliamsManu JainTheresa A LagunaSusanna A McColley
Published in: Pediatric pulmonology (2021)
Participants preferred to disclose the number of categorical ACEs rather than specific ACEs and most were open to participating in anonymous ACEs research. More research is needed before implementing screening. Educating patients, parents, and providers about ACEs and appropriate interventions when ACES are identified is needed for both research and clinical applications of ACEs screening.
Keyphrases
  • end stage renal disease
  • newly diagnosed
  • ejection fraction
  • chronic kidney disease
  • physical activity
  • young adults
  • peritoneal dialysis
  • mental health