Quality of life in caregivers of a child with a developmental and epileptic encephalopathy.

Eden G Robertson Lauren Kelada Stephanie Best Ilias GoranitisKristine Piercenull nullAnnie ByeEmma Elizabeth Palmer

Published in: Developmental medicine and child neurology (2023)

Future research should explore whether interventions that help caregivers cognitively reframe the negative experiences of having a child with a DEE, and support them to partake in activities they enjoy, boost their SCrQoL.

Keyphrases

mental health
palliative care
physical activity
early onset
current status
cognitive decline