Self-management for sickle cell disease among patients and parents: A qualitative study.

Andrews Adjei DruyeKatherine NelsonBrian Robinson

Published in: Chronic illness (2023)

The participants in this study practice several self-management actions with some differences in application between adults and children. Tailored self-management services may be helpful for adults and children when developing services for SCD patients.

Keyphrases

sickle cell disease
healthcare
primary care
end stage renal disease
young adults
ejection fraction
chronic kidney disease
newly diagnosed
mental health
prognostic factors
quality improvement