Login / Signup

How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? "With Li-Fraumeni syndrome, it's just an intermission".

Allison Werner-LinRowan Forbes ShepherdCamella J RisingAshley S ThompsonChloe HuelsnitzCatherine WilsnackPatrick BoydAlix G SleightSadie HutsonPayal P Khincha
Published in: Psycho-oncology (2023)
AYAs with LFS struggle with the term "survivor" due to their multi-organ cancer risk, short intervals between malignancies, and evolving identities. Loved ones' cancer-related suffering informed perspectives on survivorship. Survivorship care for AYAs with cancer risk syndromes requires interprofessional interventions that address their unique biomedical and psychosocial needs.
Keyphrases
  • childhood cancer
  • papillary thyroid
  • squamous cell
  • young adults
  • healthcare
  • palliative care
  • physical activity
  • case report
  • preterm infants
  • mental health
  • squamous cell carcinoma
  • lymph node metastasis
  • gestational age