Participant choices for return of genomic results in the eMERGE Network.
Christin HoellJulia WynnLuke V RasmussenKeith MarsoloSharon A AufoxWendy K ChungJohn J ConnollyRobert R FreimuthDavid KochanHakon HakonarsonMargaret HarrIngrid A HolmIftikhar J KulloPhilip E LammersKathleen A LeppigNancy D LeslieMelanie F MyersRichard R SharpMaureen E SmithCynthia A ProwsPublished in: Genetics in medicine : official journal of the American College of Medical Genetics (2020)
Offering choices that include learning some results is important and should be a dynamic process to allow for changes in scientific knowledge, participant age group, and individual preference.