Patient-centred value framework for haemophilia.
Brian O'MahonyG DolanD NugentC Goodmannull nullPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2018)
Haemophilia health care can affect multiple patient-centred outcomes across diverse patient types and healthcare systems. This framework organizes those outcomes for informing value-based decision making by multiple stakeholders and provides the basis for further refinement and development of a standardized outcomes set.