Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps.
Aditya Nrusimha VaidyamSpencer RouxJohn B TorousPublished in: JMIR mental health (2020)
This patient perspective highlights the role of patients in the innovation and codesign of digital mental health technology. Though digital mental health apps have evolved and become highly functional, many still act as data collection silos without adequate support for patients to understand and investigate potentially meaningful inferences in their own data. Few digital health platforms respect the patient's agency and curiosity, allowing the individual to wear the hat of researcher and data scientist and share their experiences and insight with their clinicians. This case is cowritten with an individual with lived experiences of schizophrenia who has decided to openly share their name and experiences to share with others the methods and results of their curiosity and encourage and inspire others to follow their curiosity as well.
Keyphrases
- mental health
- case report
- end stage renal disease
- ejection fraction
- newly diagnosed
- chronic kidney disease
- bipolar disorder
- electronic health record
- public health
- healthcare
- prognostic factors
- risk assessment
- big data
- palliative care
- high throughput
- human health
- patient reported
- data analysis
- patient reported outcomes
- single cell