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Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment.

Jacqueline Lorene BenderAlaina B CyrLuk ArbuckleLorraine E Ferris
Published in: Journal of medical Internet research (2017)
Researchers, REBs, ethicists, students, and potential study participants are often unaware of the privacy risks of social media research recruitment and there is no official guidance. Our PbD framework for online health research recruitment is a resource for these wide audiences.
Keyphrases
  • social media
  • health information
  • big data
  • public health
  • human health
  • healthcare
  • machine learning