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A core outcome set for multimorbidity risk in individuals with cerebral palsy.

Patrick George McPheeJoyce L BennerLiam SanvidoMarij E RoebroeckRita J van den Berg-EmonsWilma M van der SlotOlaf W VerschurenEdward A HurvitzMark D PetersonJan Willem Gorter
Published in: Developmental medicine and child neurology (2022)
The COS identified that most participants had poor sleep quality and endurance, did not have healthy diets, and showed increased sedentary behaviour. Individuals with CP valued these outcomes as most important, suggesting a need to assess these modifiable behaviours in this population. Objective measures of physical behaviour and cardiorespiratory endurance in the COS required additional personnel, time, and participant burden. We recommend that healthcare providers should perform a simpler first screen using questionnaire-based assessments and then focus the use of the remainder of the COS if required for the patient.
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