Exploring the Lived Experiences of Young Women With Congenital Heart Disease Through Adolescence: A Qualitative Feminist Study Using Focus Groups.
Anna TylekCharlotte SummersEllen MaulderLindsay WelchLynn CalmanPublished in: Health expectations : an international journal of public participation in health care and health policy (2024)
Active participant involvement was crucial to ensure the authentic female voice in the study. This study received support from young women with congenital heart disease. Young women contributed to the study design, recruitment of participants and analysis of results. Two of the women were also co-authors of this paper.