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Thriving alongside cystic fibrosis: Developing a grounded theory of empowerment in children and young people with cystic fibrosis during key life transitions.

Naomi H FairweatherFergal W JonesSally A HarrisMartha Deiros ColladoAmy Shayle
Published in: Child: care, health and development (2021)
The emerging model suggests that 'thriving alongside CF' may be supported by interactions between 'having a team' and 'taking charge and having a voice', leading to 'being able to just be a child', that 'concealing self' may get in the way of 'thriving alongside CF' and that these processes occur within wider medical and developmental contexts. Study limitations, clinical and research implications are discussed.
Keyphrases
  • cystic fibrosis
  • pseudomonas aeruginosa
  • lung function
  • healthcare
  • young adults
  • palliative care
  • mental health
  • chronic obstructive pulmonary disease