Content validation of observer-reported sickle cell pain diaries (SCPD-CS and SCPD-CN): results from interviews with caregivers.

Michelle K WhiteApril M FosterMiranda BaileyDenise D'AlessioAvery RizioPatricia StebbinsDanielle St PierreCory Saucier

Published in: Health and quality of life outcomes (2021)

Caregivers provided valuable input that led to important additions and changes to the measures. The SCPD-CS and SCPD-CN are appropriate and fit-for-purpose observer-reported outcome measures of SCPC-related pain frequency and severity, and impacts on health-related quality of life.

Keyphrases

chronic pain
pain management
palliative care
neuropathic pain
lymph node metastasis
squamous cell carcinoma
spinal cord injury