Whole-body MRI for cancer surveillance in ataxia-telangiectasia: A qualitative study of the perspectives of people affected by A-T and their families.
Renata NevesBlanca de Dios PerezTierney TindallNatasha Schneider FernandezRafal PanekSophie WilneMohnish SuriWilliam WhitehouseSumit JaganiMadhumita DandapaniRobert A DineenCris GlazebrookPublished in: Health expectations : an international journal of public participation in health care and health policy (2023)
People with A-T and parents of people with A-T were actively involved in this study by giving their consent to be interviewed. An independent parent representative contributed to the study, supporting the research team in interpreting and commenting on the appropriateness of the language used in this report.