Burden of caregivers and out-of-pocket expenditures related to epidermolysis bullosa in France.
Emmanuelle BourratCharles TaïebAdrien MarquiéPatricia CausseChristina BergqvistAngelique SauvestreNathalia BellonPublished in: Journal of the European Academy of Dermatology and Venereology : JEADV (2022)
EB places a considerable burden on families' daily lives. This burden is closely associated with OOP expenditures to manage EB which were on average 20 times higher compared with the French population.