"Asking Too Much?": Randomized N-of-1 Trial Exploring Patient Preferences and Measurement Reactivity to Frequent Use of Remote Multidimensional Pain Assessments in Children and Young People With Juvenile Idiopathic Arthritis.
Rebecca Rachael LeeStephanie J W Shoop-WorrallAmir RashidWendy ThomsonLis CordingleyPublished in: Journal of medical Internet research (2020)
Once-a-day pain reporting provides rich contextual information. Although patients were less adherent to this preferred sampling strategy, once-a-day reporting still provides more frequent assessment opportunities compared with other less intense or overburdensome schedules. Important issues for the design of studies and care incorporating momentary assessment techniques were identified. We demonstrate that patient reporting preferences are key to accommodate and are important where data capture quality is key. Our findings support frequent administration of such tools, using daily reporting methods where possible.
Keyphrases
- adverse drug
- juvenile idiopathic arthritis
- chronic pain
- pain management
- end stage renal disease
- phase iii
- newly diagnosed
- healthcare
- phase ii
- ejection fraction
- neuropathic pain
- quality improvement
- young adults
- chronic kidney disease
- palliative care
- electronic health record
- physical activity
- peritoneal dialysis
- open label
- clinical trial
- prognostic factors
- study protocol
- disease activity
- systemic lupus erythematosus
- machine learning
- decision making
- placebo controlled
- social media
- clinical evaluation