Caregivers' Experiences With a Web- and Mobile-Based Platform for Children With Medical Complexity and the Role of a Live Platform Coach: Thematic Analysis.

Ainslie Claire Shouldice Madison Beatty Sherri Adams Blossom Dharmaraj Clara Moore Jennifer Nan Stinson Arti D Desai Leah Bartlett Erin Culbert Eyal Cohen Julia Orkin

Published in: JMIR pediatrics and parenting (2023)

Parental caregivers describe C2 as a valuable tool, acting as a facilitator for enhanced care coordination and communication. Parental caregiver feedback showed that the live platform coach was a critical tool in educating on platform use and addressing technological concerns. Further study of the use of the C2 platform and its role in the care of CMC is needed to understand the possible benefits and cost-effectiveness of this technology.

Keyphrases

palliative care
high throughput
healthcare
young adults
mental health
pain management