Pediatric to adult transfer of care in patients with pancreas disease: Recommendations for care and research opportunities.
Cheryl E GariepyLuis F LaraJeffrey J EaslerAla ShaikhkhalilAliye UcPublished in: The American journal of gastroenterology (2022)
Young adults who have experienced recurrent acute pancreatitis and chronic pancreatitis as children or adolescents are vulnerable to poor follow-up and disease management during the transfer from the pediatric to the adult healthcare system. While formalized transition programs for young adults have been developed and described for other disease conditions, no such program has been described for young adults with pancreatic disease. This document is the first expert opinion outlining the important aspects of a transitional care and transfer program tailored to youth with recurrent acute and chronic pancreatitis. We emphasize the unique needs of these patients as they transfer to adult healthcare and the need for further research. The goal of improved transitional care and transfer is to enhance the services provided to adolescents/young adults with pancreatic disease in both healthcare settings and improve continuity of follow-up care.
Keyphrases
- healthcare
- young adults
- quality improvement
- palliative care
- childhood cancer
- affordable care act
- physical activity
- end stage renal disease
- mental health
- chronic kidney disease
- liver failure
- peritoneal dialysis
- ejection fraction
- intensive care unit
- chronic pain
- health information
- respiratory failure
- hepatitis b virus
- extracorporeal membrane oxygenation
- electron transfer
- smoking cessation