Expectations and Experiences of Patients Recently Initiated to Centre-Based Dialysis Treatment.
Johan Frederik Lillebø AlsingEithne Hayes BauerFrans BrandtJan Dominik KampmannPublished in: Healthcare (Basel, Switzerland) (2022)
Existing studies display a huge disparity in terms of the number of patients who regret having engaged in dialysis. Modifiable care processes such as providing sufficient information and education prior to decision-making have been shown to have a greater impact on patient satisfaction. Despite the importance of regret as a measure of the quality of the dialysis decision-making process, few studies have examined regret following dialysis initiation. Aim: To explore the expectations and experiences of patients who have recently started centre-based dialysis treatment. Methods: A qualitative explorative study of centre-based dialysis patients was performed. Data were collected using focus group discussions of 2-4 patients. The study was guided by interpretive description and thematic analysis was used to analyse data. Results: Three focus group discussions were performed. Participants ( n = 8) consisted of six men and two women aged 54 to 80 years of age with a median age of 72. Three themes emerged from the data: 1. transition from being a non-dialysis patient to becoming a dialysis patient, 2. physical condition following initiation of dialysis treatment, and 3. limitations and social disruptions. Conclusion: The initiation of dialysis disrupted daily life in terms of fluctuating fatigue, strict schedules, and time lost. There was a loss of independence, and participants did not view dialysis as an active choice. Nurses may have a significant impact on the perception of dialysis. This study highlights the need for further research to develop interventions to support newly initiated centre-based dialysis patients to transition from non-dialysis to dialysis patients.
Keyphrases
- end stage renal disease
- chronic kidney disease
- peritoneal dialysis
- newly diagnosed
- ejection fraction
- healthcare
- mental health
- type diabetes
- prognostic factors
- physical activity
- palliative care
- metabolic syndrome
- pregnant women
- patient reported outcomes
- adipose tissue
- chronic pain
- quality improvement
- depressive symptoms
- patient reported
- sleep quality
- functional connectivity
- case control