A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

Nanibaa' A GarrisonNila A SatheArmand H Matheny Antommaria Ingrid A Holm Saskia C Sanderson Maureen E SmithMelissa L McPheetersEllen Wright Clayton

Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2015)

Additional research is needed to understand factors affecting willingness to give broad consent for biobank research and data sharing in order to address concerns to enhance acceptability.Genet Med 18 7, 663-671.

Keyphrases

electronic health record
social media
health information
big data
healthcare
deep learning