The spectrum of co-existing disease in children with established kidney failure using registry and linked electronic health record data.
Lucy A PlumbRetha SteenkampAlexander J HamiltonHeather MaxwellCarol D InwardStephen D MarksDorothea NitschPublished in: Pediatric nephrology (Berlin, Germany) (2024)
Health records generally under-reported co-existing disease compared to registry data with fair-moderate agreement between datasets. Electronic health records offer a non-selective overview of co-existing disease facilitating audit and research, but registry processes are still required to capture paediatric-specific variables pertinent to kidney disease.