The Multiple Sclerosis Data Alliance Catalogue: Enabling Web-Based Discovery of Metadata from Real-World Multiple Sclerosis Data Sources.
Lotte GeysTina ParciakAshkan PirmaniRobert Nicholas McBurneyHollie K SchmidtTanja MalbašaTjalf ZiemssenArnfin BergmannJuan I RojasEdgardo CristianoJuan Antonio García-MerinoÓscar FernándezJens KuhleClaudio GobbiAmber DelmasSteve Simpson-YapNupur NagBassem YamoutNina SteinemannPierrette SeeldrayersBénédicte DuboisIngrid A van der MeiAlexander StahmannJelena DrulovicTatjana PekmezovicWaldemar BrolaMar TintoreNynke KalkersRumen IvanovMagd ZakariaMaged Abdel NaseerWim Van HeckeNikolaos GrigoriadisMarina Kleopatra BozikiAdriana CarráMikolaj A PawlakRuth DobsonKerstin HellwigArlene GallagherLetizia LeocaniGloria Dalla CostaNise Alessandra de Carvalho SousaBart Van WijmeerschLiesbet M PeetersPublished in: International journal of MS care (2021)
The Web-based MSDA Catalogue provides strategic overview and allows authorized end users to browse metadata profiles of data cohorts and data sources. There are many existing and arising RWD sources in MS. Detailed cataloguing of MS RWD is a first and useful step toward reducing the time needed to discover MS RWD sets and promoting collaboration.