Pilot experience of multidisciplinary team discussion dedicated to inherited pulmonary fibrosis.
Raphael BorieCaroline KannengiesserLaurent GouyaClairelyne DupinSerge AmselemIbrahima BaVincent BunelPhilippe BonniaudDiane BouvryAurélie CazesAnnick ClementMarie Pierre DebrayPhilippe DieudeRalph EpaudPascale FanenElodie LaineyMarie LegendreAurélie PlessierFlore Sicre de FontbruneLidwine Wemeau-StervinouVincent CottinNadia NathanBruno CrestaniPublished in: Orphanet journal of rare diseases (2019)
Our experience shows that a dedicated geneMDD is feasible regardless of a patient's age and provides a unique opportunity to adapt patient management and therapy in this very rare condition.