Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research: an international, multiple-stakeholder perspective.
Kirstie L HaywoodAnne LyddiattSamantha J Brace-McDonnellSophie StaniszewskaSam SalekPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2016)
An explicit statement of values seeks to align all stakeholders on the purpose, practice and credibility of PE activities. An innovative, flexible and transparent research environment was valued as essential to developing a trustworthy evidence-base with which to underpin future guidance for good PE practice.