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Patient consent to publication and data sharing in industry and NIH-funded clinical trials.

O'Mareen SpenceRichie Onwuchekwa UbaSeongbin ShinPeter Doshi
Published in: Trials (2018)
Our results suggest that consent forms rarely disclose investigators' intentions regarding the sharing of de-identified data or publication of trial results.
Keyphrases
  • clinical trial
  • electronic health record
  • health information
  • social media
  • big data
  • phase ii
  • phase iii
  • study protocol
  • healthcare
  • open label
  • machine learning
  • data analysis
  • placebo controlled