General data protection regulations (2018) and clinical research: perspectives of patients and doctors in an Irish university teaching hospital.

Matthew G DaveyJohn P M O'DonnellElizabeth MaherCliona McMenaminPeter F McAnenaMichael J KerinNicola MillerAoife J Lowery

Published in: Irish journal of medical science (2021)

GDPR has introduced complexity to the processing and sharing of personal data among researchers. This study has identified differences in the perception of GDPR and willingness to consent to data being used in clinical research between doctors and patients. Measures to adequately inform prospective research participants on data processing and the evolving landscape of data protection regulation should be prioritised.

Keyphrases

electronic health record
end stage renal disease
big data
ejection fraction
newly diagnosed
prognostic factors
healthcare
machine learning
social media
deep learning