International network for ALS research and care (INARC).

Juliette FoucherTommy M BunteVanessa BertoneRomy L VerschoorMathias CouillardCorey StraubAngela GengeCaroline IngreLeonard H van den Berg

Published in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2024)

The International Network for Amyotrophic Lateral Sclerosis (ALS) Research and Care (INARC) was founded in 2022. INARC's main goals are to offer a platform dedicated to staff members for ALS clinics and research teams who are not physicians. By nurturing experience and expertise exchanges to improve problem solving skills, the ultimate goal is to increase the standard ALS care and research. This brief report aims to describe the formation of INARC, the 2023 INARC meeting, as well as to report topics discussed, lessons learned and challenges raised by INARC members.

Keyphrases

amyotrophic lateral sclerosis
healthcare
palliative care
primary care
quality improvement
pain management
high throughput
medical students