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'It struck at the heart of who I thought I was': A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis.

Jane DesboroughCrystal BrunoroAnne ParkinsonKatrina ChisholmMark ElishaJanet DrewVanessa FanningChristian LueckAnne BruestleMatthew CookHanna SuominenAntonio TricoliAdam HenschkeChristine B Phillips
Published in: Health expectations : an international journal of public participation in health care and health policy (2020)
The majority of people in the studies included in this review expressed a determination to adapt to MS, indicating a strong motivation for people with MS and clinicians to collaborate in the quest for knowledge. Clinicians caring for people with MS need to consider the experiential and social outcomes of this disease such as fatigue and the preservation of valued social roles, and incorporate this into case management and clinical planning.
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